Frequently asked questions

Quick answers about SERaro, membership, and support for exceptionally rare diseases.

• What is SERaro?+

  SERaro – Association of Exceptionally Rare Syndromes of Portugal was founded on 9 December 2021. We represent ultra-rare diseases with few or no cases in Portugal and welcome people still awaiting a confirmed diagnosis, along with their families and healthcare professionals.
• Who can become a member?+

  Patients, family members, friends, healthcare professionals, and others who wish to support our mission may join. Membership involves completing the application form, approval at a board meeting, and payment of the minimum annual fee of €24.
• How can I make a donation?+

  You can contribute via the MB WAY app: on the home page, click “Donate”, scan the QR code, enter the amount, and confirm. Donations help fund the information, representation, and support we provide.
• Which diseases does SERaro represent?+

  We represent dozens of exceptionally rare syndromes and diseases listed on the Diseases page, with descriptions in Portuguese and English. The list is updated regularly as new cases or representation needs arise.
• What if I do not yet have a confirmed diagnosis?+

  SERaro is also here for those awaiting diagnostic confirmation. Contact us for guidance, referral to existing associations when appropriate, or informational support when there is no dedicated representation in Portugal.
• How can I contact SERaro?+

  Use the form on the Contact page, email ser@seraro.pt, or call +351 969 756 677. Our headquarters are at Praça David Leandro da Silva, 25, 1950-064 Lisbon, Portugal.