Healthcare & research
We connect members with clinicians and researchers familiar with their condition — trusted referrals, guidance on the care pathway, and links to the scientific community.
Benefits
Dedicated support for families and patients, with close guidance, practical resources, and connections with partners that strengthen clinical and educational pathways.
Family support
Human guidance, active listening, and links to others who share the same condition — so no one faces a rare journey alone.
Education
Information and resources on inclusive schooling, rights, and accommodations, aligned with initiatives on inclusive education and rare disease health literacy.
Partnerships
Collaborations that extend the reach of our support and give visibility to shared causes.
Pulso Portugal
Partnership with Pulso Portugal: the «SERaro Cuida» programme brings our members closer to the care they need — a clinical support network designed for those living with exceptionally rare diseases.